After twelve wonderful hours of sleep I woke up with such a smile on my face. Yesterday David was in rare form making us laugh and enjoying our undivided time. Because the visit included no IV, no labs, etc... he was not worried at all and did great in the CT machine.
After the CT we grabbed some lunch in the hospital cafeteria then headed over to clinic to wait for the news. Dr. Belyea is truly amazing and came out to check on us and let us know that the server was down and the report could not be read yet. This is the amazing part of the story because we were both ready to hear answers and we were worried, but we both felt peace. As always, when times have been the hardest and scariest during David's journey is when our God has made his presence felt so strongly. You would not have known from watching us that we were waiting on such BIG news. David was being silly, Mike was reading an educational magazine, and I was scrolling my phone and almost fell asleep. That is God's peace and presence!!
Then Dr. Belyea came and got us and sat around a computer with us. Most doctors would have read the radiology report delivered us the news and moved on. It touched my heart that he took the time on a busy clinic day to sit and show our untrained eyes these images. Fist off he showed us the shadow from Friday. Then he showed us the scans from yesterday and the shadow was all gone!!! It truly was just a shadow.
But then he started showing us David's last CT scans from ten months ago. He showed us his ribs and then showed us his ribs from yesterday scans. In ten months one of his ribs has had a change in it and that had to be reported. Dr. B and the radiologist both confirm that this change is not cancer but it was labeled "ground glass opacity" which basically looks like the rib has a bone spur on the end of it. It has either come from a prior infection or it is damage from all the radiation he has had during his journey. In ten months he has not had any lung or respiratory issues.
So it was great news yesterday! We would have preferred for the CT scan to be 100 percent crystal clear but it was not. The doctor assured us that this change in his rib is not cancer but they cannot tell us a definitive answer what it is. Dr. B and the entire team of oncologist and radiologist meet every Friday to talk over cases. He is going to show the team David's this Friday and see if they have any further ideas. Dr. B and I will talk Friday to come up with a return date for a repeat CT. It will be interesting to see what that rib will look like in a few more months.
Thank you dear prayer warriors for your love yesterday. When days are hard and scary you learn how important your circle is and yesterday we felt your prayers and your love. It continues to blow our mind how many folks love our boy and lifted us in prayer yesterday to our mighty and amazing GOD!!
Monday, February 15, 2016
Despite the drama of our UVA news Friday night, we have tried to carry on this weekend with our normal schedule. I was tempted to curl up on the couch with Netflix but Kyle had a basketball tournament that I didn't want to miss. I love watching my son and his friends play ball and that was a nice distraction. Mike and I were suppose to go to the hospital gala Saturday night. I decided not to go but several hours from before the event Mike talked me into going and I am glad I went. Thanks Hannah for agreeing to come again last minute:)
Just got the call from UVA that we will go Thursday at 1:30 for a CT scan to check out this crazy shadow. We are so thankful for your love, support, and prayers.
Friday, February 12, 2016
Well, this was not the way I thought this day would go. Over the last three years we have gotten in a nice habit of going for these appointments and then after a Full and long day the amazing Dr. Belyea would call us and say all is well see you in a few months.
So, the X-ray which is a flat and grainy image unlike a crystal clear CT scan, showed a shadow on the back of his lung. It was seen by the doctor so it had to be reported and now we are left to stress. Is it cancer? Is it a shadow? What the heck is it really?
So that is where we are tonight. We are trusting and believing that God has brought us this far and will never leave or forsake us. He knows we are scared to death and loves DAvid even more than we do. We trust in his plan for us.
Monday morning Dr. B will set us up with a CT scan to get a definitive answer on this crazy shadow. We will return to UVA as soon as they can fit us in for peace of mind for us. Bless that amazing Doctor... I asked him some hard questions tonight on the phone and he answered them as he always does with direct and honest wisdom. He loves our Dave too and he is sad we are being stressed out.
So we ask for our prayers that this shadow is truly nothing. Despite what next week brings, we know that God has been and always will be with us. He has been too faithful to leave us now. Thanks also for the all the messages, tests, and love. We are blessed with some amazing friends for sure!!