Robinson Update

Our family has been so busy but blessed lately. 

Hope and David have started a kids yoga class and they love it!! It is great for David's core strength and his balance.  Such a great option for our kids locally.

This past Saturday night at church our amazing middle school youth hosted a princess tea party for little girls in the community as a fundraiser for our summer mission trip.  It was a huge success with close to 60 princesses showing up for the royal treatment including hair, nails and makeup.  We also had a bible study time to learn Psalm 139:14 I am fearfully and wonderfully made. It was an amazing night at FUMC!!!

Before the tea party Saturday, we rushed to Kingsport to watch Kyle play two games of basketball.  He was not 100% after having the flu last week.  I love to watch him play something he loves so much! He got shoved down and hit his head pretty hard.  I was not a happy momma-basketball is rough!!!

Here is my little fearfully and wonderfully made princess after her royal treatment of hair, nails and makeup!  She had such a blast with her church girl friends.

The amazing Victoria did a circle braid in Hope's hair!!  It was gorgeous-she is so talented. 

Every Sunday morning David choses to sit alone on the front row so he an be close to the praise band.  Yesterday he sat with us because these beautiful ladies sat with us also!  We joked that only these pretty girls would make David change his seat at church! Ha!

Middle school youth is keeping me incredibly busy these days but I love every single second of it.  I love watching them mature and grow in their faith.  It is humbling to watch God work!  This Saturday night we are hosting a youth worship night at church and I cannot wait!! 

Life is very busy these days but it is full with lots of great stuff including church activities, sports, school, preschool and youth for me, Life is good and God is great.

CT Scan

After twelve wonderful hours of sleep I woke up with such a smile on my face. Yesterday David was in rare form making us laugh and enjoying our undivided time.  Because the visit included no IV, no labs, etc... he was not worried at all and did great in the CT machine. 

After the CT we grabbed some lunch in the hospital cafeteria then headed over to clinic to wait for the news.  Dr. Belyea is truly amazing and came out to check on us and let us know that the server was down and the report could not be read yet.  This is the amazing part of the story because we were both ready to hear answers and we were worried, but we both felt peace.  As always, when times have been the hardest and scariest during David's journey is when our God has made his presence felt so strongly. You would not have known from watching us that we were waiting on such BIG news.  David was being silly, Mike was reading an educational magazine, and I was scrolling my phone and almost fell asleep.  That is God's peace and presence!!

Then Dr. Belyea came and got us and sat around a computer with us.  Most doctors would have read the radiology report delivered us the news and moved on.  It touched my heart that he took the time on a busy clinic day to sit and show our untrained eyes these images. Fist off he showed us the shadow from Friday.  Then he showed us the scans from yesterday and the shadow was all gone!!!  It truly was just a shadow. 

But then he started showing us David's last CT scans from ten months ago.  He showed us his ribs and then showed us his ribs from yesterday scans.  In ten months one of his ribs has had a change in it and that had to be reported.  Dr. B and the radiologist both confirm that this change is not cancer but it was labeled "ground glass opacity" which basically looks like the rib has a bone spur on the end of it.  It has either come from a prior infection or it is damage from all the radiation he has had during his journey.  In ten months he has not had any lung or respiratory issues.

So it was great news yesterday!  We would have preferred for the CT scan to be 100 percent crystal clear but it was not.  The doctor assured us that this change in his rib is not cancer but they cannot tell us a definitive answer what it is.  Dr. B and the entire team of oncologist and radiologist meet every Friday to talk over cases.  He is going to show the team David's this Friday and see if they have any further ideas.  Dr. B and I will talk Friday to come up with a return date for a repeat CT.  It will be interesting to see what that rib will look like in a few more months. 

Thank you dear prayer warriors for your love yesterday.  When days are hard and scary you learn how important your circle is and yesterday we felt your prayers and your love.  It continues to blow our mind how many folks love our boy and lifted us in prayer yesterday to our mighty and amazing GOD!! 

UVA update

Despite the drama of our UVA news Friday night, we have tried to carry on this weekend with our normal schedule.  I was tempted to curl up on the couch with Netflix but Kyle had a basketball tournament that I didn't want to miss.  I love watching my son and his friends play ball and that was a nice distraction.  Mike and I were suppose to go to the hospital gala Saturday night.  I decided not to go but several hours from before the event Mike talked me into going and I am glad I went.  Thanks Hannah for agreeing to come again last minute:)

I am so glad I went to the gala.  I love supporting the charities that this gala supports, and I love getting dressed up and having a date night with my Valentine. 

Hope was our official photographer for the event. 

Sunday morning was church as usual.  The praise band sang some of our favorite songs and it was great to be in church.  My heart was so happy and touched watching our boy praise the Lord.  It is also pretty sweet to leave church with valentine cupcakes:)

Mike has tried to talk to David about going back to UVA again for CT scan and he could care less.  He has been very sweet and snuggly this weekend and I have loved our snuggle time.  I think he knows that something is up but he doesn't truly understand it. 

Crazy to believe, but we are getting hit with tons of snow again this morning.  We have not been in school since last Monday! I wish we were back with our normal schedule because the week flies by with all of our activities and school, but it looks like we will be home for a few more. Watching it snow gorgeous huge flakes this morning reminded me of God's awesome words of Be Still and Know that I am God. Despite what the CT shows, God has got this.  We know how faithful and true he is to us and how can I be in despair?  Yes, we are nervous, we are anxious for answers, and our brains have gone to the reality that cancer does and can come back.  But despite all that God is bigger and mightier than all of this.  This is our blessed comfort and hope when times are hard.

 

Just got the call from UVA that we will go Thursday at 1:30 for a CT scan to check out this crazy shadow.  We are so thankful for your love, support, and prayers.