Family Reunion

Tonight was a very happy Robinson family reunion when Mike and Kyle arrived this evening.  We enjoyed some yummy Mexican food and an evening at the playground.  I have missed my Kyle so much and Mike has missed David and Hope so much.  This is so hard to be separated but we just keep reminding ourselves that we are on the homestretch!!

Speaking of treatment, we are not clear if David did receive his chemo this week.  He has felt great (praise God!) and before his counts bottom out later in the week, we have enjoyed some playground time, and a few outings.   The kids enjoyed storytime at Barnes & Noble today and we walked around the mall.  David cannot be out in the sun in the hot part of the day so cool inside activities are best for us.

Oh this picture melts my heart in two from earlier in the week.  Here are Kyle and David walking together to school.  Watching Kyle push David's IV pole and knowing that they were going together made me tear up.  I hate this nightmare, but we have witnessed some sweet and tender family moments on the floor. 

Friday evening we were discharged and came to the condo.  David and Hope were so wild and excited that we hit Penn Park playground to get some energy out.  I was stunned that David felt this great after five big chemo treatments. We are so grateful.

This little girl loves her David and loves a good playground:)

This little Rock Star was sooo excited to be out of the hospital and outside in the fresh air that he just grinned these big grins. 

My sweet little playmates.  It is so good for David's soul when his siblings are here.

This sweet girl is growing up so fast.  She had a great week in "big hospital" preschool and we are amazed how much she has come out of her shell. 

IF you look very very closely, you can see a little light peach fuzz returning on David's head.  I am hoping it returns to its original red color, but we have been warned that often it returns lighter. 

As you can see a little girl did not want to leave the playground!! This is how I felt when we were first diagnosed back in November:)

As good as David feels we are so tempted to return home Monday morning after clinic.  But our doctor did advise us to stay locally through Thursday since he got so sick so fast last time:(  We trust and respect them so we will stay put to watch David's counts bottom out and then hopefully start rebounding later in the week.  We are thrilled that we should be home for Kyle's Area All Star tournament that starts next Saturday!! 

Happy weekend from Camp Pendleton!

Happy day

Discharge day is always a happy day around here! David finished up his chemo early afternoon and after some post-chemo fluids we were able to be discharged!! We are so thankful and grateful that this week is behind us and now we are resting at Camp Pendleton while we catch up on laundry and wait andsee what his counts are going to do. We have an early clinic appointment Monday for labs to check his levels. Hs hemoglobin has already dropped down to nine so he possibly will need blood later in the week.

Today Hopes afternoon preschool was cancelled (much to her dismay) so she and I snuck out this afternoon for some fresh air. Not only are we blessed with the use of this awesome condo, but it also has a pool! Hope really enjoyed sneaking away from the hospital for a quick dip in the pool. Sadly we missed a visit from Susan kilby, Susan Clawson, and carol Mullinax but David got to see them! Thanks ladies for the visit:)

GG is on her way home and we are so thankful that she came to help sit ith Dave so I could get out for a minute. This stay was long for some reason, but as always we had wonderful care. David is eating and drinking well and seems to be full of energy. We will be nervous this week as we watch how low his counts get. We pray the dose reduction will keep his white blood cells from going so low that he becomes septic again. We covet your prayers for that this week. I will be starting the Neupogen shots tomorrow to help his body get those new white blood cells produced.

We hope to enjoy some early morning or late evening outdoor fun to work on Davids stamina. After a week long stay he is pretty wiped out but middle of the day sun is not an option for him. We are so thankful for our Charlottesville home tonight to rest and snuggle. David is currently watching the movie Hook and eating some cheese sticks! Good evening from our Charlottesville home :)

Almost there

Happy Thursday from 7 Central! Yesterday David had a great day after his third dose of chemo. So far no nausea or vomiting and he still has an appetite for his beloved salads and oatmeal. He has enjoyed having GG and Hope here and this morning both kiddos are in school.

Because his chemo is early in the day and he is doing so well, the doctor told us that she is okay discharging us Friday evening versus Saturday morning since we are staying locally. One less long night in the hospital is awesome!

Our post chemo life is on the horizon and we are so amazed that we have just a few treatments to go!! After this discharge we will come back on Monday June 25th and then again on July 16th for one day treatments. As excited as we are, I am also nervous for next week when his counts bottom out from this treatment. Last time he got the scary bacterial infection and was septic so that is why we are opting to stay locally next week in case that happens again. We are so thankful that we have a local home so we can be close to the hospital-thanks Pendletons!!!

Mike and Kyle are home. Mike is working super hard-you would think his life calms down during the summer but the school board office is hopping this time of year. I worry so much about his stress level as he tries to be a good Daddy to his babes, his constant worry over David, and his devotion to our school system. His work ethic amazes me and I am so blessed that our kids have him as a role model.

I will admit last night I had about a ten minute pity party. Hope and I were leaving the hospital exhausted. We could not remember where the car was and we were aimlessly walking with a ton of stuff on our shoulders. She was whining as little ones do, and I got a text from my dad that Kyle bounced one over the fence in his game. I was so excited for Kyle andi just wanted to be there. Not here in this place where my car was missing, my Dave was getting chemo, and the darn elevators were out. I soon recovered as I remembered that Kyle had his Daddy and Pops there cheering him on and that for now this is where I am suppose to be. This place is such an emotional roller coaster!!

This morning we are good. Enjoying a few minutes of quiet while the kids are in school. We have had the same great nurse three days in a row and a good nurse makes the day better. There are some amazing Professionals here and we are so thankful for the love they show our Dave.

Happy day from 7 central!!!