This Thanksgiving we are somewhere we do not want to be facing something that we do not want to face. We are a blessed family in that we have lots of love, serve a mighty God, and that this boy has a fan base bigger than Goliath.
But this Momma is scared. I am tired of bad news and I am getting to the point that I myself have "white coat" syndrome. This place is a rollercoasters of emotions as we go from laughing hysterically at our Rock Star who never ceases to entertain and amaze us, to clinging to each other in Jesus' name as we once again hear news that is devastating to us.
We just love this boy so much that it is hard to phathom that our Lord loves him and us even more. Think about that pure love that you have for your children, and now just imagine that our Lord loves YOU, me and David even more than that. Despite our sinful nature, despite our unfaithfulness to Him, His love endures forever.
This morning we have had some quiet time here and I have been in my pink sassy bible reminding myself of all the promises God makes to us. My bible has a section in the back reminding us WHO God is. I cannot tell you how comforting this is to me. I am one scared Momma but God is:
Compassionate: "Praise the Lord, O my soul..... who crowns you with love and compassion. Psalm 103:1-5
Defender: "The Lord will fight for you; you need only to be still" Exodus 14:14
Encourager: "You hear O Lord the desire of the afflicted; you encourage them, and you listen to their cry. Psalm 10:17
Healer: Jesus withdrew from that place. Many followed him, and he healed all their sick. Matthew 12:15
Sustainer: Cast your cares on the Lord and he will sustain you. Psalm 55:22.
The list of WHO God is is way longer than this, but these titles of God have given me much encouragement and hope during this long nightmare. We are having a wonderful family day today-I will post pictures later:)
Thursday, November 24, 2011
Wednesday, November 23, 2011
Glimpses of Fun
Despite the unexpected news about the radiation tonight we really have had a great day surrounded by friends and love from home. It looks like Toys R Us has exploded in here and we are trying to have fun and glimpses of normalcy here in 7 Central:)
At frist I did not recognize this person, but here are me and David playing Little People in his bed:)
Pure heaven eating his first orange popsicle that his Daddy went to get at Food Lion when we could not find one in this entire hospital :) HAve we mentioned how rotten DAvid is?
We received some AMAZING and heartfelt gifts from home today and here is Kelsey showing David collages and pictures from MPS:) Thank you all so much and we cannot believe even some die hard UT fans were seen in VT stuff:)
We also received some AMAZING cards from the middle school, Sunday school, etc.. and party central here is certainly well decorated. We feel the love from the kiddos in our county and we are so in awe of their compassion.
At frist I did not recognize this person, but here are me and David playing Little People in his bed:)
Pure heaven eating his first orange popsicle that his Daddy went to get at Food Lion when we could not find one in this entire hospital :) HAve we mentioned how rotten DAvid is?
We received some AMAZING and heartfelt gifts from home today and here is Kelsey showing David collages and pictures from MPS:) Thank you all so much and we cannot believe even some die hard UT fans were seen in VT stuff:)
We also received some AMAZING cards from the middle school, Sunday school, etc.. and party central here is certainly well decorated. We feel the love from the kiddos in our county and we are so in awe of their compassion.David received a recorded book that Kyle and Caleb made him. It is so precious and something we will treasure forever. Kyle and Caleb were recorded reading the story:)
Kyle being here today has been good medicine for us all. We have missed him so and he has come in here like a breath of fresh air. He is David's nurse, PT, cheerleader, and I am awe of my son handling this all with maturity and grace. I could bawl when I watch how tenderly Kyle cares for DAvid. Mike had to drag him out of here to the Ronald McDonald house tonight:)
Walking around 7 Central. Kyle is pushing his wheel chair, Doug is pushing the IV pole, and Morgan, Tanner, and Kelsey are out for a stroll with their buddy Dave. It was so wonderful to see our dear friends today and they were here and able to watch David while we were able to meet with the radiation oncologist. With Jesus as our Sustainer and the wonderful love of friends and family, how can we be down?
Love these kiddos:)
This one is for you, Mrs. Hubble!! BTW, he asked to call you today, can you message me a number that you would not mind him calling you on? He is beyond competent with my Blackberry:)
PT brought David a remote control car to play with. He will walk way more to play then just to walk to walk. These ladies are awesome and have pushed him to exceed all of our expectations. I loved watching Mike, Kyle, and David play in the hall tonight. Glimpses of normalcy are such a treat here.
I love these boys and we encouraged David to walk down and see Miss Snowbell the enormous bunny here on 7 central:)
Opening packages with big brothers help:) The generosity and love that have come into this room amaze us. Thank you all for showering my baby with all the love, gifts, and more importantly prayer
This looks like a typical night at the Robinson household with a little hoops action between my boys:) Kyle has boosted all of our spirits today:)
The boys even played playdough tonight. These two brothers have missed each other and this Momma loved watching them interact and play.
Only David could get Kyle to color a Beauty and the Beast picture and right when I clicked the picture David laid his head on Kyle's arm. I will FOREVER treasure this picture. Check out the button that Kyle is wearing. All the faculty at David's school is wearing them and it seems that lots of folks in Smyth County are wearing them as a reminder to pray. The Grubb children walked in with them today and I could have just bawled. Smyth County your love and support of my Rock Star has overwhelmed and amazed us. Thank you for covering our family in love and prayers as we walk this nightmare
Kyle being here today has been good medicine for us all. We have missed him so and he has come in here like a breath of fresh air. He is David's nurse, PT, cheerleader, and I am awe of my son handling this all with maturity and grace. I could bawl when I watch how tenderly Kyle cares for DAvid. Mike had to drag him out of here to the Ronald McDonald house tonight:)
Walking around 7 Central. Kyle is pushing his wheel chair, Doug is pushing the IV pole, and Morgan, Tanner, and Kelsey are out for a stroll with their buddy Dave. It was so wonderful to see our dear friends today and they were here and able to watch David while we were able to meet with the radiation oncologist. With Jesus as our Sustainer and the wonderful love of friends and family, how can we be down?
Love these kiddos:)
This one is for you, Mrs. Hubble!! BTW, he asked to call you today, can you message me a number that you would not mind him calling you on? He is beyond competent with my Blackberry:)
PT brought David a remote control car to play with. He will walk way more to play then just to walk to walk. These ladies are awesome and have pushed him to exceed all of our expectations. I loved watching Mike, Kyle, and David play in the hall tonight. Glimpses of normalcy are such a treat here.
I love these boys and we encouraged David to walk down and see Miss Snowbell the enormous bunny here on 7 central:)
Opening packages with big brothers help:) The generosity and love that have come into this room amaze us. Thank you all for showering my baby with all the love, gifts, and more importantly prayer
This looks like a typical night at the Robinson household with a little hoops action between my boys:) Kyle has boosted all of our spirits today:)
The boys even played playdough tonight. These two brothers have missed each other and this Momma loved watching them interact and play.
Only David could get Kyle to color a Beauty and the Beast picture and right when I clicked the picture David laid his head on Kyle's arm. I will FOREVER treasure this picture. Check out the button that Kyle is wearing. All the faculty at David's school is wearing them and it seems that lots of folks in Smyth County are wearing them as a reminder to pray. The Grubb children walked in with them today and I could have just bawled. Smyth County your love and support of my Rock Star has overwhelmed and amazed us. Thank you for covering our family in love and prayers as we walk this nightmarePeople have commented over and over to us that we have a strong faith. Just know that there are lots of happy moments here where we are entertained by our spoiled rotten Rock Star. Then there are awful moments where panic and fear overwhelm us as we learn about this new Goliath in our life. Please just remember that Mike and I are just scared parents who happen to serve a mighty God and we are just clinging to our Jesus. He is our strength and our sustainer:)
We believe in the promises from his Word and each moment of each day here we try to not let fear overcome us but look up and place this all on the Savior. If we had to deal with this alone we would have gone crazy 7 days ago. Each day we see glimpses of his glory and we know that he is doing a might work through this nightmare. That is what makes this tolerable.
Have an awesome Thanksgiving tomorrow and just know that we are all so thankful for you, our family and friends for the love that you have showered upon our little family. We are also thankful for our mericful Savior who is sustaining us each and every moment here in 7 Central. Lastly we are thankful that David just had his first poop and that means that tomorrow for Thanksgiving he can have more than an orange popsicle on the holiday! Love to you all.
Ups and Downs Here in Party Central
Today has been a day full of friends and catching up. The Grubbs, Suzanne, and Tonya and Caleb Osborne came down today. We really had a wonderful afternoon because they brought so many cards, gifts, and love from Marion. I will post pictures later from our fun day together. The ladies (with Kyle and Caleb) went to Brixx for some pizza and a trip to Old Navy to stock up on some clothes and such. It was so nice to get out for an hour or so:)
Then we returned to the hospital and our oncologist was waiting for me to talk. The final pathology came back today. We had a wonderful surgeon who really looked all over David while he was in surgery. Anything that looked suspicious was removed and biopsied.
The surgeon found a small place in his stomach and when the biopsy came back it was found to be another Wilm's Tumor in his stomach. Thankfully Dr. Kane the surgeon has already taken out that small place, but now David will need additional radiation therapy to start next week to kill any microscopic cells that were left behind. Aggressive is how we are handeling this cancer and to be thorough he needs 6-7 radiation treatments to combat any stray cells.
This is clearly not what we wanted to hear because now that lengthens our stay here for another two weeks possibly. I will admit I fell apart at first but then after talking with the radiation doctor this type of radiation is very successful in treating this. I heard him but I also heard that we are going to be here a lot longer and that the cancer had indeed spread to his stomach.
I am feeling a wee bit overwhelmed from the emotional rollercoaster of the day. We really had a great afternoon with some dear friends, but then the rug was pulled out from us with the news that he did have a small cancer tumor in his stomach and now additional radiation is needed.
Tonight is one of those nights that I am so thankful I have my new sassy pink bible. This afternoon I allowed fear and faithlessness to sneak in, but I am going to review my bible verses and remember who my God is. I am so thankful that I have a relationship with God because you must know Him to know His power, might, and grace.
If I did not have a close relationship with my Lord I know that tonight in Central 7 I would have sunk. This was totally out of the blue-I thought all the bad news was out already, but this was unexpected. At first I caved to the fear and doubt, but then the doctors are so reassuring that this cancer is amenable to treatment and then I remembered that my God is bigger and stronger than any cancer cells. He is so faithful and he met me on my knees tonight reassuring me that He is who He says he is. He knows I am scared to death but me also reminds me that He loves our David even more than we do:)
Then we returned to the hospital and our oncologist was waiting for me to talk. The final pathology came back today. We had a wonderful surgeon who really looked all over David while he was in surgery. Anything that looked suspicious was removed and biopsied.
The surgeon found a small place in his stomach and when the biopsy came back it was found to be another Wilm's Tumor in his stomach. Thankfully Dr. Kane the surgeon has already taken out that small place, but now David will need additional radiation therapy to start next week to kill any microscopic cells that were left behind. Aggressive is how we are handeling this cancer and to be thorough he needs 6-7 radiation treatments to combat any stray cells.
This is clearly not what we wanted to hear because now that lengthens our stay here for another two weeks possibly. I will admit I fell apart at first but then after talking with the radiation doctor this type of radiation is very successful in treating this. I heard him but I also heard that we are going to be here a lot longer and that the cancer had indeed spread to his stomach.
I am feeling a wee bit overwhelmed from the emotional rollercoaster of the day. We really had a great afternoon with some dear friends, but then the rug was pulled out from us with the news that he did have a small cancer tumor in his stomach and now additional radiation is needed.
Tonight is one of those nights that I am so thankful I have my new sassy pink bible. This afternoon I allowed fear and faithlessness to sneak in, but I am going to review my bible verses and remember who my God is. I am so thankful that I have a relationship with God because you must know Him to know His power, might, and grace.
If I did not have a close relationship with my Lord I know that tonight in Central 7 I would have sunk. This was totally out of the blue-I thought all the bad news was out already, but this was unexpected. At first I caved to the fear and doubt, but then the doctors are so reassuring that this cancer is amenable to treatment and then I remembered that my God is bigger and stronger than any cancer cells. He is so faithful and he met me on my knees tonight reassuring me that He is who He says he is. He knows I am scared to death but me also reminds me that He loves our David even more than we do:)
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