Monday, October 20, 2014

2014 Buddy Walk!

Down Syndrome Creed
Author Unknown

 
My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains

 
I was sent here among you
To teach you to love
As God in heaven
Looks down from above.

 
To Him I'm no different
His love knows no bounds
It's those here among you
 in cities in towns
That judge me by standards
That man has imparted
But this family I have chosen
Will help me get started


 
For I'm one of the children
So special and few
That came here to learn
That same lessons as you
 

 
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start

 
The Lord gave me life
To live and embrace
And I'll do as you do
But at my own pace.

 
Thank you to the special and wonoderful souls who came to walk with us yesterday to celebrate our kids who are "fearfully and wonderfully" made by God. 
 

 
This is a wonderful community for our children because they are so loved, accepted, and valued for how God made them.  Thank you dear friends for loving our children like we do. 

Saturday, October 18, 2014

A Beautiful day at Wake Forest

Last year we got to experience a special game day experience at UVA called Special Spectators. It is an amazing non-profit group that offers seriously ill children a gameday experience. When we got to do experience Special Spectators at UVA, we visited the locker room, got to go on the field, etc... After seeing the joy from my children I knew that we as a family had to get involved. You can read about our day here: http://www.sweetlifewithboys.blogspot.com/2013/10/our-special-day-at-uva.html

After our experience at UVA with Special Spectators we were able to host other families at Virginia Tech. Read about that amazing day here http://www.sweetlifewithboys.blogspot.com/2013/10/our-amazing-day-at-lane-stadium.html

Today our family got to host four other families at nearby Wake Forest University for a wonderful day with children from Brenner's Children Hospital with serious medical issues. We left Marion before 7a.m. to get to our tailgate spot to meet our families.  It was a gorgeous day in Winstson-Salem and the kids with our group could have cared less that Wake Forest lost-they had a great day!!

 
Our first stop was for the Deacon walk.  Hope jumped up into her big brother's arms because she was scared of the Deacon mascot!  Ha!

Here are several of our families that we met today and got to spend a whole day with.  These families were amazing and so grateful for such a special day.  Red, Hot and Blue catered our tailgate and it was awesome kid-friendly food. 


The boys in our group were so excited when the team bus pulled up and the football players got off of the bus.  The band, cheerleaders, and fans line the walk that they walk through.  A Wake Forest official was so kind to make sure our kiddos got a good spot to see the team. 
Several of our families watching the team walk in. 

This was one of my favorite moments of the day.  The head football coach was walking in with the players.  He did not speak to any other fans, but he came right up to Joshua and spoke to him and loved on him a little bit.  It was precious and very sincere.  Well done coach! 

After the pep rally and Deacon walk, Wake Forest had several inflatables and such for the kids.  The boys in our group loved this inflatable football toss.  What fun!

Hope was petrified of the Deacon, but not David!  Ha!

 
This is Mike with Jace.  I looked down and saw my man holding a two year old so he could get a better view during the opening of the game, and I realized that God had given me a good man.  We both had a wonderful time with the kids and the families.  Jace and his brother J-mee are leaving Winston Salem next week to move to Florida so their Daddy can train for the 2016 Olympics!  Jace and his brother J-mee will be on our hearts for a long time.  Precious boys.

All the kids in our group loved the President of Wake Forest and the Deacon riding into the game on a motorcycle!  The stadium at Wake Forest is beautiful!!
 
What a wonderful day hosting and meeting families from Brenner's Children's Hospital.  As a Mom of a child that fought cancer and has special needs, I find kindred spirits when I volunteer with this amazing organizaiton.  It is our pleasure to help give other families a wonderful college game day experience like what we experienced at UVA.  We are all tired and a little sunburned, but our hearts are full!  Thanks Special Spectators for another wonderful day.

Sunday, October 12, 2014

Week in a Flash

Where did this week go?  It went in a flash with a few moments captured on my camera:)

 
Tuesday Kyle was inducted into his middle school Honors Club because of his straight A's last year, SOL scores, and good citizenship.  Dressing up a little and being on stage, and having his name called is not his favorite thing, but we were there to cheer him on. 
 
 
 We were trying to take a serious picture, but this is what we came up with!  Ha!  I love my oldest and I am so thankful that he is comfortable marching to the beat of his own drum. 
 
 One of my previous preschool parents blessed me this week with this handcrafted bracelet with the words from the David Crowder Band "How He loves Us" which is so special to our family.  I love it so very much.  Brandi Dimit is crazy talented!!
 
 Yesterday I spent many hours with my Mom and dear friend Misty playing Bingo for Sabika jewelry.   After three hours of bingo, laughing over our daughters, and forced clapping for other women who yelled bingo when we were one number away, I did come away with one pretty pair of earrings.  I am very competitive and bingo for beautiful jewelry brought it out in me! 
 
 Mike was out of town for several days this week for work stuff, and I can tell that our kids are growing up because his absence was hard but it is getting easier now that we do not have babies and or toddlers in the house.  We limped through his absence and Friday night we went to the movies to see Alexander and the Terrible, Horrible, No Good Very Bad Day at the theatres while we waited on him to come home.  Our kids are growing up and a night out on the town with just them is precious to me.
 
 Yesterday, Kyle hitched a ride to Concord College with the Pugh boys to watch Ethan Richardson, a former MSHS football player playing college football.  Kyle had such a fun day and Ethan even caused a fumble!  We are proud of you Ethan and thanks to the Pughs for letting Kyle tag along. 
 
 
Oh my these two before church this morning.  As most of you know, David has major sensory issues and haircuts have been a disaster the last decade of his life.  I have resorted to cutting it at night while he was asleep.  Blessedly the shaggy look has worked for David:)  Saturday morning Mike and Kyle went to the barber shop and I am not sure what went down, but David willingly jumped in the barber's chair and got. a. haircut!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  This is huge for our family and for David.  Our little buddy is growing up.  His insistence to dress like he wants (new outfit pictured above), his new obsession with wearing manly deodorant, and now a trip to the barber shop prove that he is growing up and maturing.  We are overwhelmed but so thankful. 
 
We are thankful for busy weeks but oh so thankful for quiet weekends like this where we can relax and recharge here together.  God is good. After a powerful worship service this morning at church and a fun gathering later with my UMW women's circle later,   I am also so thankful for church and the women that I am surrounded by at church.  Life is not easy ever, but life is good because God is good.