Wednesday, June 30, 2010
Today
Sunday, June 27, 2010
Snapshot of Life
We are definitely enjoying the pool and the sunshine, but our life right now is just as busy as during the school year.
David is doing summer school at his school which will end this Friday. We also have to fit in all his different therapies which includes Mon and Wed. at 8 a.m. Brutal.
Kyle swims three mornings/week at 7:30-thankfully his father can take him on his way to work and I can pick him up at 9a.m.
Starting this week Kyle will be volunteering at a summer enrichment program for special needs kids on Tuesday and Thursday from 8:30-2:30. He is super excited about this and really is taking his volunteer role seriously. I cannot wait to see how a real day goes for him. He visited last week and met a few of the 3's and 4's that he will work with.
Mike and Kyle are in the midst of Allstar Baseball Season. They are practicing like crazy getting ready for a tournament that starts July 5th. I get nervous during Allstars, but I going to try to enjoy it this season. Last year I paced during every game with a newborn Hope in my arms.
We are going to start the library programs this week. We have been visiting the library weekly to get new books and movies, but I am being a mean mommy and making my boys read this summer:)
That is a snapshot of our life right now. I love summer and I get really sad when I start seeing the Back to School suppplies being rolled out at Walmart.
This past weekend we went to a swim meet with Kyle in Abingdon. He did great and got third place overall in his age group!! It was a hot, outdoor meet, so thankfully my parents came and helped with Hope and Dave so they could play at home with the AC!
Friday, June 25, 2010
The Week
Over the last few weeks, we have had a renovation going on in our basement. Mr. Greer has painted all the nasty, dark paneling and now it is off white!! Then, Mr. Charlie and Dwayne pulled out all the nasty carpet and put down new hardwood floors. It is unbelieveable how much bigger the space looks and now I can actually enjoy the basement without needing an antidepressant! HA!
Then, Mike's mom arrived and we decided that new blinds were in order and off to the store we went. She installed four new blinds and now the space looks even better with natural light! The previous blinds were all broken which meant that we could not open them.
Here is a glimpse of the "school room" with the new floors and new storage bins that my mom found at a yard sale!! Love it! This room is technically the office because that is where our desktop computer and desk are (and typically where I blog from) but I kind of took it over and made it into a little classroom/playroom. Pardon my pledge bottle and Diet Dr. Pepper can!!
Here is a glimpse of the family room with the new paint job, floors and blinds!! I so wish that I had before pics, but just take my word for it that this is a much brighter space!
Sunday, June 20, 2010
Hope's Party Day
Before the party, my parents gave Hope her new pink cozy coupe! It is so cute and now she and Dave can ride together!!
Thursday, June 17, 2010
Painful
Today, I left my youngest child (who is not fully weaned) and my eldest child and went about an hour and a half away with David to visit a Child Development clinic for psychological testing. We wanted and needed accurate testing on David for future planning and to maintain his current services.
It was rolling along quite beautifully all morning. David cooperated and seemed quite thrilled with our little road trip! Ashley went along for help and provided some comic relief when needed. We went out to lunch, witnessed a court house brawl and even visited a cute bakery.
Then before we left in the afternoon, I was brought in to hear their preliminary findings. Granted I used to be a school social worker and administer the same tests to families that I filled in today for David. I find it still so like God that the last social history that I completed before leaving on a permanent maternity leave years ago involved a sweet little girl with Down Syndrome. Anyway, I am no expert but the lingo we were talking today is familiar ground with me and granted I am kind of an expert on Dave.
The psychologist in his very sincere voice explained his testing on David and what his official IQ score was today. It was a fine number and it was not a huge shocker to me. I smiled and said okay-that is similar to the testing done last year by the school system. Then he explained to me in his serious, psychologist voice that the testing that I completed was surely not accurate because his social adaptive score was clearly too high and was not congruent to what his testing found. Clearly he then explained to me that I was not helping anything by exaggerating David's ability and that it was his job to bring me back to reality about David.
After much bantering about what David is truly capable of doing he then laid the reality check out for me. After meeting with David about 4o minutes total without me, he then felt lead to share with me that David's IQ will begin to dwindle down in number and that he will not be able to live independently in the future and that we as a family should be making long-term care plans.
After I gathered myself off of the floor and wiped the snot that was flying out of my nose due to my sobs, I thanked him for his time and made my grand exit. I felt that if I stayed one more moment in that airless room, I should not be helped accountable for my actions.
I am not clear why his Ph.D degree gave him the right or privilege to box my sweet Dave in today. Clearly Mike and I are realist about the disability our son has-you know since we both are educator-type people and all, but it galls me beyond belief that after meeting with our Dave for that brief time that is all he could muster?? He was so grave in his findings that for a split second I thought he was going to throw out the institution word. Seriously.
Now that my tears are dry and I have gotten a little perspective from the situation I am thankful for today. I am thankful that I was painfully reminded that without our vigilance our Dave could end up stereotyped and written off. Not on my watch.
I know that our God created Dave in my womb and that he is fearfully and wonderfully made. I know that our God never leaves us or forsakes us and that he was tenderly wiping my tears as I sobbed in the bathroom of that pitiful little "clinic" today. I know that our Dave has his limitations but our God is the author of life and that He knows no limits. Tonight as I am nursing my hurt pride and broken heart I am thankful that there is someone I can cling to that knows no limits and loves our Dave even more than we do.
David was put in our life for a reason and I believe that one of the MANY blessings that I will personally receive from mothering this precious soul is the present reminder that God never brings us to a place where he is not willing to meet us-even a stinky, tiny "clinic" in the middle of nowhere!
Tuesday, June 15, 2010
Hope's Birthday!
She loved the bows on the presents!! She actually cried when Mike tried to throw away the bows!!
The boys got her a baby stroller for her Bitty Baby:)
I love that she knows where a cute bow is suppose to be:) Seriously, she loved her bows more than her presents.
How exciting that this is for me!!! David was dying to rip it open for her, but we made him back off!! We also got her the Little People Dance and Twirl Castle and the boys had as much fun with it as she did!! Below is a little tiny slideshow I made from Smilebox. Pause the blog music and click on play! After you view each page, just click on the arrow in the bottom corner of the page to keep the slideshow going!
This free digital scrapbooking design customized with Smilebox |
Hope's big day!
She has unfortuntately learned to be a crawler and seems to have no fear!
Sunday, June 13, 2010
Last week of school
Speaking of Hope, she is having a really hard time with her ears right now. She is on Augmentin trying to clear the infection and fluid out, and she is also teething. That is a rough combo for a sweet litle girl.
The start of our busy week was the second grade kick ball tournament!! Kyle was super excited because my boy loves a healthy dose of competition, but also because Mike was asked to be one of the umpires! It was so fun to see him put on shorts and a tshirt to head to work:)
Mike looking like an official umpire!
Jamming to the beach music!
Here is most of David's class giving big love to their sweet teacher. I have loved David's team this year and his classroom teacher was a sweet, patient soul. David has had a great year with her and it was really tearful to say goodbye to her this year. We all wiped a few tears away when it was time for the final hug. I always have an emotional time saying goodbye on that last day-how do you properly say thank you to someone who has loved on your child for a solid year?
That is it for us-we had a huge last week of school with so many special plays, programs, field days, and Special Games tied into one little week. It was fun, but this family is ready for the pace of life to slow down just a wee bit!