Today so far has been peaceful and calm. We are playing praise music from the blog and keeping the environment in here calm and quiet. We are not talking on the phone much because we are whispering. To have a long conversation we need to step out of the PICU. To "talk" with us today electronically through facebook, email, text, or blog comments would be the best. We are really trying to keep this room quiet and calm so that David will remain asleep and healing without discomfort. I love to hear his sweet raspy voice, but his vitals are better when he is asleep. We really hope to get out of the PICU soon.
After the craziness of the last few days we are relishing the quiet and calm of being with David. We both feel relief that the bad news has already been shared with us and that the big surgery is behind us. Yesterday was a long hard day with lots of procedures in the morning and then the long and gut-wrenching wait during the surgery.
We hope to get pathology results back Tuesday. We are waiting to hear if it is definitely Wilm's and what type of Wilm's it is. The pathology results will dictate course of chemo treatments and such.
Here are some things to make you smile:
Before they wheeled him to surgery there was quite the crowd in our room. I will never forget that precious face smiling and waving madly to his fan club! He yelled "goodbye everybody!"
Mike and I of course walked with him down to surgery, but he insisted that his Pops go as well. When we got to the pre-op room David was asking for "jail" in his sweet southern accent. We realized that he wanted another ultrasound and was asking for gel on his belly!
The other night during a super serious consult with the pediatric surgeon, he passed gas. We all kind of giggled and then he started shaking his head and said "not me" and tried to pin it on the attending surgeon that was going to operate on him! He is a character as you all well know.
There have been many many moments that he has kept us laughing when we all felt like crying. I am sure that the nurses think we are lunatics for being so loud and laughing so loud in his room. We cannot help laughing at our rock star. He has LOVED all the attention and he has just laid in his bed (in only his underwear I might add) and entertained us all. God knew we would need a sense of humor!
Thanks friends and family-we will keep you updated as we hear more.