One IV out!!! He is still majorly "hooked up" but this was the original one put in at SMCH. Speaking of our local community hospital, this major medical center has been very complimentary of the care that we received there. According to our doctor here, they did everything righton even to the point that they did not need to repeat any of the scans and such here. Our little local hospital was right on with this boy:) Good job SCCH:)
We moved out of the PICU!!! Whoo hoo! That was a moral boost for us today!! We are now in a huge private room on 7 Central. We are now referring to this as the party room because we have room to pull out all the fun stuff that he has received and there is plenty of room in here for his fan club. We were given this room because of our infamous reputation already for the number of visitors!
A home-cooked meal. Ashley's friends, Wendi and Jennifer drove here from Marion today to pick up Ashley and to bring us a home-cooked meal. Meatloaf, mashed potatoes, green beans, macaroni and cheese, and homemade pumpkin roll were awesome. We also have enough leftovers for tomorrow! Thanks ladies for your thoughtfulness.
Okay, warning about graphic pictures coming.... IF you are squeamish scroll down fast!!
This is his incision. Amazing huh?! We thought it would be all gauzed up and such, but this major incision was simply "glued" back together. We were blown away when he came back from surgery. I must say it is a pretty incision.
Do you see the two places on his chest? Those are where the port-a-cath was inserted. I still cannot wrap my brain around that one, but that is for later down the road. It is healing nicely they say.
Pardon the stomach bile, but here are some of DAvid's bible verses that we literally laid over his bed today. We are really enjoying working through the list from facebook and I have spent lots of time this evening in my new sassy pink bible.
We had Wendi bring down our Disney scrapbook that just came in the mail so we can start planning our "this nightmare is behind us party" and another trip to Disney:) This Momma could use a dose of time in the fantasyland of Disney. That sounds like pure heaven considering where we are.
My little multi-tasker enjoying the only thing we liked about the PICU-this comfortable and cozy window seat.
Watching a movie:) Also a great shot of his "sprinkles"
This picture was taken right before Jason and Ashley left to go home. Poor Ashley had just been crying at the thought of leaving him. She has been with us since the ER where this nightmare started. I am writing this through tears, but she and Jason have been angels during the last few days. They have moved our things around for us, run to Walmart for us, helped us "listen" and collect info from the docs, and we are beyond blessed to have these two in our life.
Here is Wendi saying goodbye to David! She sat with him so we could leave the room to eat her yummy dinner. We do not eat in here in front of David. It will still be days before he can eat or drink due to the tube in his nose:(
Starting to decorate our window with some of the fun stuff like coloring books, pictures, cards, and such. Thank you all for the gifts and for your generosity.
I have received many messages today that David was prayed for in lots and lots of churches today. Thank you dear friends for loving my David enough to pray and ask others to pray. I have to admit that I have prayed a lot but with very few words. Last night I laid in the bed and tried to pray but the tears came instead of the words. All I could get out was "help us, heal him, you be glorified." I could not get words to come out but that was my chant over and over.
Today I have thought so much over how fitting his name is. We have kind of renamed him to Rock Star lately, but his given name of David is so perfect. When he was born we thought his Goliath was going to be Down Syndrome, but clearly there is a bigger Goliath in mind for David called Stage Four Cancer. That is fine-we have got our faith and we are warming up our sling shot. Bring it Cancer Goliath-our God is bigger than you!
I received many messages today about how big attendance was in many churches in our county today. One message even said that David's trials have been used to create a faith revivial in our area. I can handle this nightmare a little bit easier if I know that the Lord is using this precious seven year old Rock Star to bring people closer to him. If people are seeking his face and praying to Him for David then it lessens the pain of what we are enduring.
I keep singing in my head the song "Bring the Rain"
Bring me Joy
Bring me Peace
Bring the chance to be free
Bring me Anything that brings you glory
And I know They'll be days
When this life brings me Pain
But If that is what it takes to praise you
Jesus Bring the Rain
If you do not know this song, look it up with lyrics on youtube. It is also the third song that comes up on our blog. I love it and it fits our circumstances perfectly. We are in a downpour here and barely hanging on to our "umbrellas" but Jesus bring the rain for your glory.
I remember just a week ago I had turned that song on while I mopped and I was getting my praise on and I stopped and thought that that is a hard song to sing. We all want to praise God, but we do not want the rain to come. But this Momma is grasping for an umbrella during the downpour but trying so continue to praise the One that is sustaining us during this storm.
Tomorrow brings another day of healing here. We are waiting for Tuesday to come which will be the day that we anticipate to get the pathology of the tumor back. That pathology report will determine our course of treatment from here on out. I am really not anxious about it but I am ready to hear it truly is Wilm's and if it is the favorable or unfavorable kind. Specifically pray that it is the favorable type of Wilm's.
Thank you dear friends for your continued love and prayers:) Rock Star is healing nicely!