Tomorrow is the big day. We have spent this evening consulting with the oncology resident and the pediatric surgeon resident about tomorrow. Just for the record that oncology resident is awesome and I think I got snot on her shoulder when she held me when I sobbed. She is human and awesome and I am so thankful we are here.
Just a funny story that happened here. We have a VHS in our room and VHS tapes in here. We have watched the Lion King and Beauty and the Beast 6 million times today. David has announced that he wants to be the Beast next year for Halloween and he wants Hope to be Belle. I cried to the oncology resident about whether is would be okay to buy his costume for next year and she smiled and said sure:) We celebrate little victories around here. There have been times that I have been so hopeless today that I wondered if my little buddy would even be here next year. That is how emotional and scared we are.
Tomorrow David's kidney and adrenal gland will be removed in the afternoon. This is a pretty big surgery for a little guy and he will probably enter PICU for a day or two afterwards to control his pain. They will also insert a Porta-cath for future chemo treatments. I can't even talk about that right now.
The good part of this is that they truly believe that this is a Wilms tumor in his kidney. The good news is that you can treat the kidney affected by simply removing it. The bad news is that unfortunately his cancer is stage four because it has metastisized (sp?) to his lungs and there are many nodules on his lungs. This is the part that worries us. The oncologist wants to remove his kidney so the chemo can focus on those darn blasted nodules on his lungs.
We are still scared, we dread David enduring this big surgery and we know the post-op can be kind of hard on him. The good news is that this little guy is hilarious and is keeping us laughing. We are getting ready to cheer on the Hokies here in Wahoo Land.
The other thing is that the CT scan that was suppose to be done this afternoon has been put off until the morning. We know the surgery is "suppose" to be mid-afternoon tomorrow so that realistically means early evening by these time standards. This place is awesome but with so much coordination that needs to happen around here time moves slow.
Here is what we are praising God for:
Jesus-we feel Him here with us and we know that he is sustaining us.
Our care-we are where we should be.
David-he has perked up considerably and is making us laugh! We are watching the Hokies and he is one fired up fan even here in "enemy territory"
Ashley and friends-Ashley is here with us and she has been such a blessing to us. She cares for David while we get to listen and consult with all these specialist. He loves her and she can get him to do stuff that he is not wanting to always:)
Our cheering section-we feel y'all's love and we know that everyone is praying. It gives us goosebumps to know that you all are praying and loving our sweet boy.
Chemo-The good news from the oncologist is that the chemo required for a Wilms tumor is typically outpatient. Considering the fact that I have two more babes at home this was welcome news:)
We will update as we know more:)